Things have been changing. It's not necessarily good or bad, it's just different.
Steroids have given our little one a belly and some chubby little cheeks.
The treatments of Vincristine make her hair fall out. We got down to about 1/3 of her hair left and decided to just cut the remaining hair. Now we no longer have to sit and brush her hair several times a day to keep it from knotting up while she is sleeping.
She also has a massive increase in appetite. We joke that she is like a little pregnant woman: she gets hungry, she wants something very specific, and she wants it now. She has woken me up a couple of times in the night wanting food. Tacos, pizza, yogurt and ice cream are the most requested items.
Another change, is her personality. We can't wait to get our talkative 5 yr old back. Right now she is so quiet she rarely says anything unless it is to ask for something to eat. Several parents have told us they 'got their child back' after the steroid were ended. Looking forward to it!
Today we spent some time at the doctor's office. Our first phase of treatment is 28 days long - beginning with a lumbar puncture and bone marrow sample and ending with a lumbar puncture and bone marrow sample. Madi is currently on day 24. To get ready for her procedure on Thursday, we needed a number check to see what she might need in preparation. All that was needed was one bag of blood. And, since it was 'munchy Monday', she got to have a Steak 'n' Shake cheeseburger during her transfusion. Happy little girl!
Be praying that things go well on Thursday, please. I'll update as soon as I can after we get home. Have a great night!
Steroids have given our little one a belly and some chubby little cheeks.
She also has a massive increase in appetite. We joke that she is like a little pregnant woman: she gets hungry, she wants something very specific, and she wants it now. She has woken me up a couple of times in the night wanting food. Tacos, pizza, yogurt and ice cream are the most requested items.
Another change, is her personality. We can't wait to get our talkative 5 yr old back. Right now she is so quiet she rarely says anything unless it is to ask for something to eat. Several parents have told us they 'got their child back' after the steroid were ended. Looking forward to it!
Today we spent some time at the doctor's office. Our first phase of treatment is 28 days long - beginning with a lumbar puncture and bone marrow sample and ending with a lumbar puncture and bone marrow sample. Madi is currently on day 24. To get ready for her procedure on Thursday, we needed a number check to see what she might need in preparation. All that was needed was one bag of blood. And, since it was 'munchy Monday', she got to have a Steak 'n' Shake cheeseburger during her transfusion. Happy little girl!
7 comments:
Such a brave little girl Madi is! Our prayers will be with her Thursday and they are everyday! :)
In that last picture she looks so much like Sawyer!
We have been praying and will continue to.
We are praying for Madi every day and especially this upcoming treatment! We pray that she will be able to be off the steroids soon. We love you all so much. We are thankful for your updates, Jessica! AND, I agree with Angela...she so looks like Sawyer more than I thought:)
Love you all and our prayers are for each of you especially sweet Madi.
thanks everyone!
She does look like Sawyer. Maybe it's the haircut. At least I didn't give her a mohawk, too. ;)
I appreciate your having this blog so we can "stay informed" of Madi's progress. She is daily in our thoughts and prayers and will especially be on Thursday!
Love to you all - Kelly V.
Oh, I missed this post. I think her short hair is pretty cute! Good job, mom! That's so funny about the munchies! Especially in the middle of the night. I totally relate. :-) I hope you get your chatterbox back and soon. Love you guys!
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