We have been trying to find a balance in our lives between taking care of a child who is ill and keeping things normal for everyone.
Going to the park I found by taking a wrong turn. We spent some time swinging...
and then sitting on Papaw's lap on the bench after my legs fell asleep in the swing.
Trips to the mall.
Getting a new hat and new doll can really wear a person out.
The other two kids were still wound up and ready for the next stop.
Yesterday (Thursday) was our treatment day. She is really doing a good job adjusting to the routine at the doctor's office. We check in, wait for them to have a room ready, prep and then access the port, blood draw, chemo in, wait for blood results and then either get necessary blood/platelets or de-access the port. She is still afraid of the needle hurting when initially accessing the port, even though she tells us afterward that it didn't hurt. She also DOESN'T like anything sticky on her skin - no tape, no band-aids, not even Press 'n Seal. We can avoid most of the sticky stuff, but the needle is a must. Fortunately, (or unfortunately) she will get used to this with time.
According to yesterday's blood results, Madi is no longer neutropenic. She scored a 527 on that scale! A nice change for her to be able to eat all the fresh fruits she loves. We will also need to head back in on Monday to make sure her hemoglobin and platelet numbers are where they should be in preparation for her lumbar puncture and bone marrow sample procedure on Oct. 4th.
Keep praying!
Going to the park I found by taking a wrong turn. We spent some time swinging...
According to yesterday's blood results, Madi is no longer neutropenic. She scored a 527 on that scale! A nice change for her to be able to eat all the fresh fruits she loves. We will also need to head back in on Monday to make sure her hemoglobin and platelet numbers are where they should be in preparation for her lumbar puncture and bone marrow sample procedure on Oct. 4th.
Keep praying!
1 comment:
I love getting the updates, the pictures, and I'm glad you can have a bit of normal out and about. The pictures of Madi squeeze my heart. She must be fatigued a lot. I'm sure it must be the combo of chemo and her sickness? Really glad to hear the improved numbers. One thing I've learned through you is that diet effects those numbers. I'm so glad about the fruit! We pray every day. Love you guys! Madi's surprise is on the way.
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