Last Friday saw us at the Pratt Center for a final dose of AraC. Such a relief for us to finish up the week strong. She was tired that day, but she was able to attend school Monday thru Thursday that week. Madi really doesn't let the leukemia hold her back much at all!
While we were waiting for CBC results that day, I was talking with one of the other parents. We have met so many nice people/families that are going through the same struggles we are. While 'comparing notes' the this mother was telling me about the hospital trips, headaches, delays and other trouble her daughter was having with her treatments. She then asked how Madi was doing. I always cringe when this question comes up. (We have been so very blessed with the way Madi's body has handled everything so far, so I always feel like, at some point, something bad is just waiting to happen.) I told her that Madi's treatment was going as planned and we haven't had any hospital runs, sickness or delays- definitely answered prayers. As soon as the information left my mouth, I thought 'now something will happen'.
Fast forward to Sunday. Sawyer woke up with a croupy (is that a word?) cough and some labored breathing.
Monday morning, his cough was worse, he had a fever, and he was really struggling to breathe. A trip to the pediatricians was in order after the older 3 got on the bus. Sawyer tested negative for RSV and was put on Zpac to help clear him up. Lots of prayers on my part that this didn't travel to anyone else. Monday night Liv was feeling tired and cuddled up on my lap. Yep, she had a nice little 102° fever going on. *sigh*
Tuesday morning both Sawyer and Liv were fever free and seemed fine. (Well, S still had his cough, but he wasn't struggling to breathe.) We had to head in to the Pratt Center for a CBC and a weekly checkup. Quick in and out, right? Ha! Madi was in need of platelets. No biggie, really. It just adds about 2 hours to our time, so we got the platelets ordered and picked out a couple of games.
A little later the nurse came back to let us know that her hemoglobin was down to 8.5, meaning she would need blood soon, but we could put it off a couple of days. Also, Madi was due for her second round of IVIG. Blood takes about 2 hours. IVIG takes about 3 to 4 hours. Total of 6 hours since they have to do one at a time incase of a reaction. I decided to push these off until Friday when I knew Kevin would be off work and I could go solo with Madi.
We always try to keep an eye on Madeline's temperature. It's one of our first indicators that something is going on in her body that isn't right. We left the Cancer Center with a last temperature check of 99°. As she sat staring at her plate at supper time Tuesday night, I realized I should probably check and see where she was. Quick trip to Walgreens to get a new thermometer for Madi, since I used the other on Sawyer and Liv, and we discover she is at 101.8°. Wait a few minutes for a second check and she is at 102°. Time to call the doctor.
Okay, I'm getting tired of typing.....Long story short time.
We headed to the ER to get a blood culture and spend the night in the hospital. They started her on antibiotics and were also able to get the unit of blood in her system that night while she slept. The next day she got a chest xray and another CBC. Kevin and I switched out that night so I could get some sleep. (Madi has a tendency to go to the bathroom a lot when hooked up to IV fluids - day and night.) Thursday, we were given the green light to go home right after lunch.
Did you know she didn't have a fever the whole time she was at the hospital? A little frustrating, but I wouldn't change what we did. All of it was for the best for Madi, and that's all that matters.
We are keeping a close watch on her now. Today she was able to go in for her scheduled IVIG therapy and that should help her immune system a lot. Next week we will go in for a weekly CBC and I'm pretty sure she will need platelets again. I'm just very thankful that these needs can be met whenever they come up. Plus, even though she had to spend some time in the hospital, she is still on track for treatments in two weeks to start up again.
She continues to be in good spirits as the day goes on. Hopefully, she will be able to have a full week of school next week.
Keep up the prayers - we appreciate them so much!!
Friday, February 15, 2013
Saturday, February 9, 2013
and repeat
This week has been pretty much a repeat of last week - minus the LP and fluid backpack.
She continues to handle the chemo with little to no side effects. This is a huge thing for her since it allows her to have a more 'normal' life. She's been to school every day this week except friday with a smile on her face.
We went in on Wednesday to get her chemo push and unit of blood as planned. She takes all this in stride - it's amazing! As soon as she was hooked up to the pump, she settled in with an apple and a movie to wait out the 3 hour timeframe.
She continues to handle the chemo with little to no side effects. This is a huge thing for her since it allows her to have a more 'normal' life. She's been to school every day this week except friday with a smile on her face.
We went in on Wednesday to get her chemo push and unit of blood as planned. She takes all this in stride - it's amazing! As soon as she was hooked up to the pump, she settled in with an apple and a movie to wait out the 3 hour timeframe.
She soon tired of just sitting and watching, so we went and go at game out of the cabinet. It was a lot of fun watching her little mind work and get better at strategy. She's a quick little girl! Since Lisa had the two little ones, I was able to give Madi my undivided attention. It's always fun to spend this time with her and forget , somewhat, the real reason we are sitting in this room.
Thursday was a quick chemo push, CBC and then on to school. I'm so glad she likes school and will now go to her class willingly.
Numbers for the day:
WBC - 1.6
Hgb- 10.0 (up from 7.5 before transfusion)
Plts -173
ANC-1100
Friday was her last treatment for the week. *sigh* She was tired from the long week, and that translated into being emotional. I was glad a friend wanted a play date and had Olivia and Sawyer at her house. (As if Lindsay doesn't have enough to do.) Anyway, Madi was in tears because of the upcoming de-access. Not that she was going to miss the needle and line, but she hates having sticky things removed from her skin. The tape that is put over the needle and access site is roughly 4"x4" and very sticky. It took some reassuring, but Ms. Heather, her nurse for the day, was able to work with Madi and remove the tape without a fight and with minimal pain. There are a lot of special people who work in this office!
Madi decided she was too tired and not wanting to go to school this day. I was all for keeping her home the rest of the day so she could rest and recover. Perfect school attendance was gone a long time ago and there is no reason to push her to go. Soon after we got home she fell asleep while sitting on my lap. Always good for Mom to get some cuddle time in.
We've had some concern with her having a cold and cough this week. Along with that, she has a low grade temperature that keeps fluctuating between 99* and 100.3*. If it gets above 100.5* and stays there we'll have to get in touch with the doctors.
The next two weeks will be quiet with only blood tests to be done. So glad that Madi's body will get a little break and some time to recover and prepare for the next round of chemo.
Tuesday, February 5, 2013
again
Madi started her second week of four consecutive days of chemotherapy today. It's amazing how well her little body holds up to everything that is thrown her way. She was able to spend the whole day at school yesterday- she was very tired, but still in good spirits by the time she got home. We even took some time for a quick trip to the library right after I picked the kids up from school.
Today, Madi was accessed, CBC done, AraC push received and then a line left in like last week. A pretty quick trip overall. Just before we were able to get out the door and get Madi to school, her CBC results came back. Her hemoglobin is down to 7.5, so she will be getting a bag of blood tomorrow as well as her chemo. She still went to school today - she had some painting she couldn't miss out on.
Keep the prayers coming. We really appreciate everyone helping us through all of this. Your comments and prayers really help to keep us positive!
Today, Madi was accessed, CBC done, AraC push received and then a line left in like last week. A pretty quick trip overall. Just before we were able to get out the door and get Madi to school, her CBC results came back. Her hemoglobin is down to 7.5, so she will be getting a bag of blood tomorrow as well as her chemo. She still went to school today - she had some painting she couldn't miss out on.
Keep the prayers coming. We really appreciate everyone helping us through all of this. Your comments and prayers really help to keep us positive!
a full week
(from Jan 30th to Feb 2)
Our little girl is SO blessed and one of the biggest blessings in her life is all the people surrounding her with love. Thank you all for all the prayers at the beginning of the week on her behalf!
After we got the number results on Tuesday morning, I got the ball rolling for the rest of the week. My parents were already planning to come for a visit and it worked out great to have them watch the two littler ones during Madi's long week of chemo treatments.
Wednesday was the big day with an LP, intrathecal chemo (methotrexate), a second chemo push of AraC (Cytarabin), and an hour IV drip of Cytoxan. A lot of medicine to go into that little body. She handled everything really well, though.
I'll give you a run down of how the time goes on a day like this. Typically, we head in to the Pratt Center to get her port accessed. The nurses at Test and Treatment could do this, but we have had issues with blood return (being able to draw blood for testing) due to the needles used there. Plus, she is more comfortable having it done at the Cancer Center. (A no brainer for a parent, if you ask me.) Just before we leave, she has to be loaded up with extra stuff and snacks for after the procedure - which is promptly handed to Mom to carry.
We then head over to the Test and Treatment area at Mercy Children's hospital. We haven't been there in a month, but everyone recognizes us when we walk in and make Madi feel very welcome. They're a very caring group of people. It was amazing the difference the nurses saw in her. Everyone who stopped by the room to say 'hi' commented on how good she looked and how happy she was. I was glad they finally got to see the 'real', very talkative Madi.
Skip-Bo Jr. helped us pass some of the time, plus it made her happy to beat me.
It takes about an hour from the time we arrive to the time she is taken back to the room for her LP. During this time, blood is taken for CBC and CMP, urine sample taken and she is hooked up to an IV of fluids. I get to walk back to the room and stay with her until she is asleep to help keep her calm and relaxed. It then only takes about 20 minutes for the doctor to complete the LP and get her back to the room.
After the LP and intrathecal Methotrexate, vitals are taken and the AraC is given in the room. The nurses try to give, or at least get started, on all the extra meds before she wakes up from the anesthesia. This helps get us out a little quicker and eliminates her becoming nervous about what might still need to be given. After she wakes, she gets busy eating anything and everything she can get her hands on since she has to fast before procedures.
While Madi was back getting her LP and chemo, there was a box delivered to the room I was waiting in. To make sure her kidneys weren't overwhelmed and continued to function well, she had to be hooked up to fluids until her appointment the next day. The backpack holds the pump and fluids so she can stay mobile. The box was full flushes, heparin block and anti-nausea medicine to be administered through the line left in her port. How truly intimidating for a non-medically trained person!! The home nurse was kind enough to give me a crash course and a phone number to call for help before she left us.
That day finished up with a trip to church services that night and Madi and I sleeping on the living room couches to make night time trips to the bathroom a little easier on both of us.
Numbers for the day:
WBC - 7.6
Hgb - 9.5
Plts - 516
ANC - 4330
Thursday, Friday and Saturday were pretty uneventful. She had an appointment each day to get a chemo push of AraC. She also started on 6-TG for a total of 14 days which will end on the 12th. Daddy was able to take her in on Saturday after attending his CrossFit class. It's always nice for the two of them to connect for a little bit and spend some time alone. It also allows Madi to see her daddy as a caretaker instead of thinking only Mommy can do all of this.
Next week is pretty much the same with four consecutive days of treatment but no LP. She has been doing such a good job. We are hoping for at least a few days at school!
Our little girl is SO blessed and one of the biggest blessings in her life is all the people surrounding her with love. Thank you all for all the prayers at the beginning of the week on her behalf!
After we got the number results on Tuesday morning, I got the ball rolling for the rest of the week. My parents were already planning to come for a visit and it worked out great to have them watch the two littler ones during Madi's long week of chemo treatments.
Wednesday was the big day with an LP, intrathecal chemo (methotrexate), a second chemo push of AraC (Cytarabin), and an hour IV drip of Cytoxan. A lot of medicine to go into that little body. She handled everything really well, though.
I'll give you a run down of how the time goes on a day like this. Typically, we head in to the Pratt Center to get her port accessed. The nurses at Test and Treatment could do this, but we have had issues with blood return (being able to draw blood for testing) due to the needles used there. Plus, she is more comfortable having it done at the Cancer Center. (A no brainer for a parent, if you ask me.) Just before we leave, she has to be loaded up with extra stuff and snacks for after the procedure - which is promptly handed to Mom to carry.
We then head over to the Test and Treatment area at Mercy Children's hospital. We haven't been there in a month, but everyone recognizes us when we walk in and make Madi feel very welcome. They're a very caring group of people. It was amazing the difference the nurses saw in her. Everyone who stopped by the room to say 'hi' commented on how good she looked and how happy she was. I was glad they finally got to see the 'real', very talkative Madi.
Skip-Bo Jr. helped us pass some of the time, plus it made her happy to beat me.
After the LP and intrathecal Methotrexate, vitals are taken and the AraC is given in the room. The nurses try to give, or at least get started, on all the extra meds before she wakes up from the anesthesia. This helps get us out a little quicker and eliminates her becoming nervous about what might still need to be given. After she wakes, she gets busy eating anything and everything she can get her hands on since she has to fast before procedures.
Then we just wait and until everything is done and we can leave. She was gifted a new friend before she left the Cancer Center, so Minnie got to hang out with us all morning.
While Madi was back getting her LP and chemo, there was a box delivered to the room I was waiting in. To make sure her kidneys weren't overwhelmed and continued to function well, she had to be hooked up to fluids until her appointment the next day. The backpack holds the pump and fluids so she can stay mobile. The box was full flushes, heparin block and anti-nausea medicine to be administered through the line left in her port. How truly intimidating for a non-medically trained person!! The home nurse was kind enough to give me a crash course and a phone number to call for help before she left us.
That day finished up with a trip to church services that night and Madi and I sleeping on the living room couches to make night time trips to the bathroom a little easier on both of us.
Numbers for the day:
WBC - 7.6
Hgb - 9.5
Plts - 516
ANC - 4330
Thursday, Friday and Saturday were pretty uneventful. She had an appointment each day to get a chemo push of AraC. She also started on 6-TG for a total of 14 days which will end on the 12th. Daddy was able to take her in on Saturday after attending his CrossFit class. It's always nice for the two of them to connect for a little bit and spend some time alone. It also allows Madi to see her daddy as a caretaker instead of thinking only Mommy can do all of this.
Next week is pretty much the same with four consecutive days of treatment but no LP. She has been doing such a good job. We are hoping for at least a few days at school!
Tuesday, January 29, 2013
good to go
I was able to get the numbers this morning once the Pratt Center opened. What a powerful thing prayer is!! Not only did Madi's fever go away during the night, but we also got great results on her blood test. Her ANC, the pertinent number, went from 96 at last check to 2266! (They were just hoping she would get above 500!) There will be no delays for her at this point.
Thank you for all the encouraging messages! Keep praying, please. We have four straight days of chemo for her to endure.
Thank you for all the encouraging messages! Keep praying, please. We have four straight days of chemo for her to endure.
Monday, January 28, 2013
numbers
Things have been going really well over the last week or so, everything considered. At Madi's last appointment, all that was needed where blood numbers. It seems that we are always interested in numbers. Not a bad thing, but it is something that can't be seen. It's also something that I can't check on my own. A little 'grrr' moment for me. Wouldn't it be nice if a CBC could be obtained much like a diabetic gets blood sugar results? (This is where you, the reader, nod up and down vigorously in agreement with me. Thank you.)
Numbers for the day: (1/23)
WBC - 2.4
Hgb - 10.9
Plts - 235
ANC - 96
So. With numbers like that, we are still staying in and away from crowds. School and church are the big ones. Although, while on the steroids, she really hasn't had the energy to do much. We are also waiting to see what her numbers will be this week. If her ANC hasn't come up to either 500 or 750 (I'm not sure which it needs to be) Madi won't be able to have her treatments this week.
{A little aside here. While not having treatment this week would mean a break for Madeline, it would just put her off schedule and make the overall treatment phase last longer. Something we don't want. Either result we get will be both good and bad.}
As I sit here typing, I'm waiting for a phone call from the home nurse to let me know what time they will be at the house to get a blood sample. We thought this would be better/easier. So far, it's been a bit frustrating. The call I put in to the Pratt Center let me know that the nurse was supposed to be her this morning. It' now after 2 and we haven't heard anything. (Yes. This is a 'grrr' moment.) Hoping we will get someone here with enough time to get CBC results today, or still have enough time to go into the Pratt Center and let them do it for us. - End of rant.-
Good things that have happened since the last post? Glad you asked.
January 18th Madi turned 6. We had a quiet little celebration at home with pizza and a Culver's ice cream cake. YUM! After she ate, she promptly went and laid down on the couch to quickly fall asleep.
Monday January 21st was a day off from school. The kids had a lot of fun playing with each other and Madi started to get some energy back.
Tuesday January 22nd we were able to have Madi's homebound teacher, Mrs. Rogers, come out and spend a couple hours working on school.
We also threw caution to the wind that day and headed down to Chesterfield Valley to attend Chick-fil-a's Family Night. It was American Girl Doll themed and the kids had a blast. We were even able to take a couple of friends with us. Madi stayed close to me most of the night and even ended up on my lap for part of the time. She was happy but exhausted by the time we got home. 7 Kids, 6 kid's meals, 6 dolls and finally 7 balloons in the van on the way home. Memories!
23rd was her blood test.
January 26th, just before going to bed, Madi lost her first tooth. Lots of excitement over this: we did not want to get that little booger pulled. She was pretty pleased with herself. I have a feeling the second tooth will follow shortly, since she now knows it won't hurt to pull it out.
That has you all caught up to where we are now. IF Madi's numbers are good, she has an LP and chemo appointment Wednesday at 10:30 after getting accessed at the Pratt Center at 8:45am. Chemo will then be administered Thursday, Friday and Saturday. It's promises to be a long week, but we would like to just get it over with. If her numbers aren't where they need to be, we will be waiting until they do get at a good level. This would be our first delay. Not what we want, but we are very grateful she hasn't had any prior to this. Truly a blessing!
Please be praying for her. Specifically that her numbers reach good levels to continue treatment. Thank you to everyone who has been following along on our journey. It is much easier road with you all tagging along for the ride.
***Update***
The nurse just left with the little vial filled with Madi's blood. She is headed to the hospital now to get it to the lab. We should have results sometime later tonight. Fingers crossed!
Also, Madi felt warm while sitting on my lap. Temperature is at 99.8*. Please be praying that it doesn't go higher and goes away. It doesn't become a real concern until it gets to 100.5* or higher and doesn't come down on its own. We can't even give her tylenol to help because it would potentially mask a bigger problem.
Pray, Pray, Pray!!
Numbers for the day: (1/23)
WBC - 2.4
Hgb - 10.9
Plts - 235
ANC - 96
So. With numbers like that, we are still staying in and away from crowds. School and church are the big ones. Although, while on the steroids, she really hasn't had the energy to do much. We are also waiting to see what her numbers will be this week. If her ANC hasn't come up to either 500 or 750 (I'm not sure which it needs to be) Madi won't be able to have her treatments this week.
{A little aside here. While not having treatment this week would mean a break for Madeline, it would just put her off schedule and make the overall treatment phase last longer. Something we don't want. Either result we get will be both good and bad.}
As I sit here typing, I'm waiting for a phone call from the home nurse to let me know what time they will be at the house to get a blood sample. We thought this would be better/easier. So far, it's been a bit frustrating. The call I put in to the Pratt Center let me know that the nurse was supposed to be her this morning. It' now after 2 and we haven't heard anything. (Yes. This is a 'grrr' moment.) Hoping we will get someone here with enough time to get CBC results today, or still have enough time to go into the Pratt Center and let them do it for us. - End of rant.-
Good things that have happened since the last post? Glad you asked.
January 18th Madi turned 6. We had a quiet little celebration at home with pizza and a Culver's ice cream cake. YUM! After she ate, she promptly went and laid down on the couch to quickly fall asleep.
Tuesday January 22nd we were able to have Madi's homebound teacher, Mrs. Rogers, come out and spend a couple hours working on school.
 |
| Little brother along for the ride. |
January 26th, just before going to bed, Madi lost her first tooth. Lots of excitement over this: we did not want to get that little booger pulled. She was pretty pleased with herself. I have a feeling the second tooth will follow shortly, since she now knows it won't hurt to pull it out.
That has you all caught up to where we are now. IF Madi's numbers are good, she has an LP and chemo appointment Wednesday at 10:30 after getting accessed at the Pratt Center at 8:45am. Chemo will then be administered Thursday, Friday and Saturday. It's promises to be a long week, but we would like to just get it over with. If her numbers aren't where they need to be, we will be waiting until they do get at a good level. This would be our first delay. Not what we want, but we are very grateful she hasn't had any prior to this. Truly a blessing!
Please be praying for her. Specifically that her numbers reach good levels to continue treatment. Thank you to everyone who has been following along on our journey. It is much easier road with you all tagging along for the ride.
***Update***
The nurse just left with the little vial filled with Madi's blood. She is headed to the hospital now to get it to the lab. We should have results sometime later tonight. Fingers crossed!
Also, Madi felt warm while sitting on my lap. Temperature is at 99.8*. Please be praying that it doesn't go higher and goes away. It doesn't become a real concern until it gets to 100.5* or higher and doesn't come down on its own. We can't even give her tylenol to help because it would potentially mask a bigger problem.
Pray, Pray, Pray!!
Wednesday, January 16, 2013
enter IVIG
We are still going strong with all of Madi's treatments and medicines. We've been very fortunate/blessed to remain on schedule during cold and flu season. All her numbers have remained at good levels with no need to get blood or platelets.
Madi ended her 7 day round of steroids (dexamethasone) on the 8th and then received treatment on the 9th. I kept her home Wednesday night while everyone else went to church services. My thinking - why drag her out in the cold if all she is going to do is sleep on the way there, have me carry her in, sleep all through class and worship on my lap, have me carry her out and then sleep all the way home? (This scenario has happened multiple times.) Also, do you remember me lamenting the fact that our little Madi goes silent during steroid treatment? What a difference a day makes! She was bouncing off the walls all evening, talking nonstop and couldn't settle in to go to sleep that night. (Melatonin to the rescue!) I was this (holding fingers up scant mm from each other) close to asking her to PLEASE be quiet for a little while. Instead I just smiled and enjoyed the moment.
Treatment on the 9th went smooth. She was pretty 'lazy' early in the day, but a lot of that is due to her not being able to get a deep sleep while taking steroids. If you look closely, you will be able to notice a little puffiness in her face. That went down quickly, but I'm sure it will be back this week.
Numbers for the day:
WBC - 9.7
Hgb - 12.6
Plts- 427
ANC - 6460
Today, Jan 16th, Madi and I got to go back in for another treatment. She started steroids again this morning and has a total of 14 doses. Her appetite has been back up, but she only wants certain foods. We've tried to anticipate what she will want and keeping the pantry stocked. She hasn't lost any more weight and hopefully she will gain a little bit back in the next couple of weeks.
So, the title of this post contains IVIG. Ever heard of it? I hadn't until the call from Dr. Rob on the 10th saying it would be good for Madi to have. Basically, IVIG will boost Madi's antibody levels and help her fight infection since the chemo has depleted her own natural levels. Not a big deal, but it did add about 3.5 hours to the day. I know I've said it before, but I am SO grateful for our friends in the St. Louis area. Lezlie was kind enough to keep the 2 littlest ones for me, as she has in the past. It made her day a little more complicated, I know, but it was a huge help for me to be able to focus on Madi the whole time. I was even able to sneak in some learning/school while we were at the Center.
Madi ended her 7 day round of steroids (dexamethasone) on the 8th and then received treatment on the 9th. I kept her home Wednesday night while everyone else went to church services. My thinking - why drag her out in the cold if all she is going to do is sleep on the way there, have me carry her in, sleep all through class and worship on my lap, have me carry her out and then sleep all the way home? (This scenario has happened multiple times.) Also, do you remember me lamenting the fact that our little Madi goes silent during steroid treatment? What a difference a day makes! She was bouncing off the walls all evening, talking nonstop and couldn't settle in to go to sleep that night. (Melatonin to the rescue!) I was this (holding fingers up scant mm from each other) close to asking her to PLEASE be quiet for a little while. Instead I just smiled and enjoyed the moment.
Treatment on the 9th went smooth. She was pretty 'lazy' early in the day, but a lot of that is due to her not being able to get a deep sleep while taking steroids. If you look closely, you will be able to notice a little puffiness in her face. That went down quickly, but I'm sure it will be back this week.
WBC - 9.7
Hgb - 12.6
Plts- 427
ANC - 6460
Today, Jan 16th, Madi and I got to go back in for another treatment. She started steroids again this morning and has a total of 14 doses. Her appetite has been back up, but she only wants certain foods. We've tried to anticipate what she will want and keeping the pantry stocked. She hasn't lost any more weight and hopefully she will gain a little bit back in the next couple of weeks.
So, the title of this post contains IVIG. Ever heard of it? I hadn't until the call from Dr. Rob on the 10th saying it would be good for Madi to have. Basically, IVIG will boost Madi's antibody levels and help her fight infection since the chemo has depleted her own natural levels. Not a big deal, but it did add about 3.5 hours to the day. I know I've said it before, but I am SO grateful for our friends in the St. Louis area. Lezlie was kind enough to keep the 2 littlest ones for me, as she has in the past. It made her day a little more complicated, I know, but it was a huge help for me to be able to focus on Madi the whole time. I was even able to sneak in some learning/school while we were at the Center.
We made it through a couple of educational games for kindergarteners, Brain Quest for 4-5yr olds and some of the Brain Quest for 1st Grade before she was ready to lay down and rest.
Since we arrived at the Cancer Center at 9:45am and didn't leave until 2:45pm, lunch was purchased at the little cafe on the first level. Not bad. Not super good. Edible and filling. It had probably been in the warmer for a little while.
Numbers for the day:
WBC - 1.1
Hgb - 10.9
Plts- 219
ANC - 180
Notice the big change? Yep. Those have definitely gone south. It was advised that keep her in and away from large crowds at least through the weekend. We can go in Saturday morning and get another CBC and see where she stands.
Next week all she has is a CBC on Wednesday. No more treatments or procedures until the 30th. Hooray!! If anything else happens between now and then, I will try to post and keep everyone up to date.
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