Examples?
-Two weeks ago her white count was at 10,000. Thursday it was at a whopping 1,000.
-Last Friday Madi slept until 11:30 am, got up for a potty break and drink, and then promptly fell asleep again until 4 pm. All day her temperature fluctuated between 99.4* and 100.2*. (Very thankful there was no need to head in to the hospital.)
-Thursday she was finally cleared for then new year to get her IVIG treatment. I asked the nurse to please run her numbers for us, just to see how things were going. Results show her ANC is at 480 - a far cry from the 1500 they like to see.
I am glad we know to keep her home from school and a little protected until her numbers rebound a bit. There's a nasty stomach bug going around right now, and it would be best to avoid that. I'll take her back in Monday afternoon to see if things have improved after having her off her 6-MP for a few days.
So, enough with the yuck. (Although, prayers are requested for Madi.) We have been having some fun around here even during the nasty cold weather. Kevin and I decided to enroll the kids in swim lessons. Our kids already know how to swim well and are extremely confident in the water. This is more to help them with technique. Plus, it's great physical therapy for Madi and exercise for all of them!
Madi FINALLY lost her first top tooth. It's been hanging on for months! Long enough that her permanent teeth are already halfway in hiding behind those baby teeth.
Another exciting event is the fact that Madi turns 7 today! Such a blessing to be able to celebrate her life and watch her grow in so many ways. She still has several more months of medication, treatment and monitoring, but her little body has started to gain weight and inches once again. We couldn't be happier with the person our little girl is turning out to be.
